As many of you on my Twitter and Facebook, and of course here on LJ, know, I ended my monday with an unplanned trip to the emergency room. A bit of background here...Ever since our car accident in 2006, I've had some odd feelings, momentary freeze-ups/blackouts, and things like that. We finally figured out in early 2009 that they're seizures of some sort. Unfortunately, we still have no clue what the root cause is...hoping the Neurologist eventually comes across a test that'll help me figure that out.
Let me set the scene for all of you. When I have these seizures, I lose my grip on time, feeling, what's happening around me. According to sighted people who've seen them, even though I'm on medication, they seem to be becoming more intense. Usually right afterward, I feel kinda dizzy for a minute. Also, because I can't have just one in a day, it's going to be at least 5 or 6...At most 13 (we'll get to that story in a bit), it honestly makes me afraid to do anything that day that involves walking outside my home. So more than the physical aspect, it also mindfucks you. Pardon the language, but it's the term that comes to mind.
So, Memorial Day weekend, I had about 13 of them on Saturday and into Sunday morning. As most of you know, I own and host on Mojo Radio on the weekends. I thought nothing of it; did my Saturday night show as planned. I had 2 of these seizures during that night's show, and I believe both of them went over the air. I'm not aware of what happens, but I've been told everything from I look like I'm in pain, I throw things such as my cane, and I alternate between saying "I'm Okay...I'm Okay..." and "Oh, shit, make it stop." They used to last 15-30 seconds. However, what sparked me finally allowing myself to be taken to the ER was when my boss saw me have one while I packed up my stuff for the day. It scared her enough that she had our admin assistant call 911.
Fire guys showed up, and took my pulse and blood pressure. Not sure what the pulse was, but BP was 178 over 120 or 187 over 120...Not sure which. By the end of the night, I had 124/78. Vastly different.
So, in the end, I agreed with Danielle, Heather, Devious angel, and others who said not to wait for tomorrow's appointment, but to get my ass to the ER right now...They could at least run some tests, check fluids and all that.
So, originally, we were going to go to Virginia Mason because it's close to work. However, Heather made the suggestion, which turned out to be brilliant, to go back to my usual ER, the Swedish campus in Then, if my docs were needed, they'd just be a phone call away.
I had one more seizure while in the reception area getting my info inputted. They got me back pretty much immediately.
Here, my friends, is where we learn about the boring part of theEdmonds emergency room. I waited; got some blood drawn, then they started shooting me up with Ativan. I apparently fell asleep a few times...Talked to people whose names I don't recall.
The ER doc talked to my doc though, and they agreed to try me on this new prescription to mix with my current one. Essentially, here's how it was described...In simple terms,
You havve ex amount of electricity on the breaker box. When the threshold is reached, that's when you fall into another seizure if you're not careful. So I'm now on Trileptol, and have started something called Kepra.
In the end, they shot me full of Ativan, gave me the prescription for this, and sent me home, where I'm at now.
If you have questions, ask away. I may not have all the answers, but am willing to do what I can.
In closing, want to thank all of you for encouraging, and in some cases Really helping out. Special thanks to Heather who, even though our marriage didn't work in the end, when I really need someone I can count on, you're always there...Thanks for getting ahead of us and getting there in time to finish the paperwork. Danielle, thanks for your concern, and for being not only a great boss/director, but a true friend. Sorry this one was so far out of your way.
That's it from here. I apologize if there are loads of misspellings...Between lack of sleep, ativan, and my new seizure med...I'm exhausted. Need sleep. Good night all, and thanks again for your support. It means a lot.